Shopping Cart
Your Cart is Empty
Quantity:
Subtotal
Taxes
Shipping
Total
There was an error with PayPalClick here to try again
CelebrateThank you for your business!You should be receiving an order confirmation from Paypal shortly.Exit Shopping Cart

Support we offer

We intend to offer a range of support for patients and their families as we move forward. Including a social groups for people to meet in person to help share their stories and be in an environment of similar people who have a greater understanding of their situation, and we are also developing an online area for people to speak and share their concerns and provide mutual support.


At present we offer:

- A call with our founder to help speak through concerns

- An email dialogue to help provide key medical information, discuss concerns and to provide signposting to other organisations and support services

- Information about government initiatives about new medical research 

0