Fahr's Research
International Survey into Patient Experience
In March-April 2026, Fahr Beyond, conducted an international survey involving over 150 participants, the largest Fahr's Disease patient cohort involved in any study to date. The survey looked at the experiences of being diagnosed with the condition, how it is managed, the challenges individuals face, and the support needs they have.
See here, to read the Impact Report
See here to read the more detailed: Data Analysis Report
Fahr’s Reference List
We have compiled an extensive reference list of academic and medical literature related to Fahr's Disease (aka PFBC / PBC). The reference list is available to download here: