Fahr Beyond Trustees & Staff
Fahr Beyond Trustees/Directors
Dr Adam Tate
Prof. Carina Fearnley
Carina Fearnley is one of the founding directors of the charity and is a Professor of Science and Technology Studies and Director of the Early Warning Centre at University College London. As an interdisciplinary researcher, Carina brings her understanding on managing scientific uncertainty, risk, and complexity to help Fahr Beyond develop its strategy to meet the needs of the future. In addition, through her own personal experiences, Carina is able to understand the implications of brain complications and is passionate in ensuring that patients are appropriately supported.
Vanessa Tate
Vanessa joined the director team in November 2018 in her commitment to ensure that Fahr Beyond has the operational systems in place for the charity to be able to support users of our services. She is particularly passionate about ensuring that the families of those diagnosed with Fahr's has the information available to help plan for care and living.Â
Dr Francesca Magrinelli
Dr Francesca Magrinelli is a Senior Clinical Research Fellow and Honorary Consultant Neurologist at the UCL Queen Square Institute of Neurology, University College London, and the National Hospital for Neurology & Neurosurgery, London.
She has a clinical and scientific expertise in movement disorders and neurogenetics of movement disorders and neurodegeneration. Her research mainly focuses on gene discovery and validation, deep pheno-genotyping, genotype-phenotype correlations, and experimental approaches towards precision medicine. She recently identified PSMF1 as a new gene for early-onset Parkinson’s disease/parkinsonism. She has an interest in genetics of iron and calcium brain deposition.
She has published over 80 peer-reviewed articles on these topics. She was awarded the prestigious MJFF Edmond J. Safra Movement Disorders Research Career Development Award 2023.
Carl Ward
Carl has a proven track record and creating a successful and respected Homecare and Live in Care Agency in Kingston upon Thames for the past 19 years. Also as a Managing Director and owner of a substantial and profitable multi branch group within the Motor Industry. Particular areas of expertise encompass finance, personnel and recruitment, business growth and marketing. Also gained considerable experience in residential property development both in the UK and South Africa.
Patience Littman
Patience is the Treasurer of Fahr Beyond Charity and brings a strong foundation in finance and accounting. She holds an AAT Level 3 qualification and has practical experience in purchase ledger, accounts administration, and financial record management.
With a keen eye for detail and a commitment to good financial governance, Patience is passionate about promoting transparency, accountability, and responsible stewardship of the charity's resources. As Treasurer, she is dedicated to supporting the long-term financial sustainability of Fahr Beyond, enabling the charity to continue delivering meaningful impact and expanding its reach within the communities it serves.
Staff
Ellie Dale -Â Community Engagement and Support Officer
Ellie has more than 20 years’ experience working in the voluntary sector, supporting people and communities affected by health conditions. Her experience includes peer support, volunteer management, engagement, fundraising, service development and working with health professionals and communities. Ellie is passionate about ensuring that people affected by rare and long-term conditions have access to meaningful support, information and opportunities to connect with others. She joins Fahr Beyond to strengthen community engagement, develop volunteer opportunities and help shape the charity’s future support for people living with Fahr’s Disease and their families.
When she’s not working, Ellie loves being creative, walking, travelling and practising yoga.