Linda, from USA
Living with Fahr's
This disease has stolen my life. I’m a single mom of 4 teenagers and a PE teacher. I was athletic and loved the outdoors. I’m in so much pain I can hardly perform activities of daily living. I can barely do my job. My hips legs especially hurt. My head is always foggy and heavy. It’s hard to concentrate.
Top 3 Challenges
- Performing my job
- Housework
- Doing things with my kids
Managing Fahr's
Very gentle movement
Medicine
Therapy
Fahr's Support
It helps me to be in community with others who are going through this. It’s hard though when we hear about someone’s symptoms moving fast
Information and training for neurologists and a team of doctors at one place we can access would improve the support for the Fahr's community.
If you would like to share your story please get in touch with us by emailing enquiries@fahrbeyond.org and a member of our team will be in touch.